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Title : 27th EURORDIS Round Table of Companies Workshop
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27th EURORDIS Round Table of Companies Workshop

EURORDIS - The Voice of Rare Disease Patients in Europe

The Voice of Rare Disease
Patients in Europe

27th EURORDIS Round Table of Companies Workshop

"Patient engagement in the product life-cycle and community advisory boards (CAB)"

Tuesday, 16 October 2018 (09:00 to 17:00)

Discussions at this meeting will focus not only on existing CABs and their added value, but also how to work with patients in new disease areas and start a truly collaborative experience.

Programme:

Draft programme  

Registration:

Registration for this event will open in summer.

Attendance at this event is recommended for the following target audience:

• Pharmaceutical and biotech representatives working in:
  • Clinical Project Management, Science Policy, Clinical Development, Medical Science, Research, Medical & Innovation, Medicines Development, Research & Development, External Science & Partnering, Clinicial Scientists
  • Regulatory Affairs
  • Patient Advocacy, Public Affairs, Patient Engagement, Patient Partnership, Patient Support

• Pharmaceutical and biotech companies engaging in Scientific Advice / HTA meetings
• Clinical Research Organisations (CROs)
• Medical devices companies
• Rare disease patient representatives engaged in active CABs or those in creation
• Rare disease patient advocates representing groups that co-sponsor clinical trials / joint ventures with the healthcare industry
• Representatives from non-profit organisations/foundations developing medicines/therapies for rare diseases

Venue:

Recinte Modernista de Sant Pau

Carrer de Sant Antoni Maria Claret, 167

08025 Barcelona

Spain

Website : https://www.santpaubarcelona.org/en

Welcome Dinner:

There will be a Welcome dinner on Monday, 15 October starting at 8 p.m.

Venue to be confirmed.

Dress code: smart casual.

There will be a complimentary return bus service provided from the restaurant to the Amrey Sant Pau Hotel.

Accommodation:

Please make your own hotel reservations and travel arrangements.

Please refer our list of hotels close to the workshop venue if needed.

Please send any questions concerning registration to Anne-Mary Bodin: anne-mary.bodin@eurordis.org or Emilie Zingg: Emilie.zingg@eurordis.org

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