Nurse and Stranger Things star bond over condition - Hallo friendsGOOD OF CONEX NEWS, In the article you read this time with the title Nurse and Stranger Things star bond over condition, We have prepared this article for you to read and retrieve information therein. Hopefully the contents of postings Article health, Article news, Article sport, Article tips, Article treatment, We write this you can understand. Alright, good read.

Title : Nurse and Stranger Things star bond over condition
link : Nurse and Stranger Things star bond over condition

Nurse and Stranger Things star bond over condition

• Kelly Wosnik, 41, suffers from cleidocrainial dysplasia, or CCD - a disease that affects bone development
• Wosnik shares her CCD diagnosis in common with 'Stranger Things' star Gaten Matarazzo
• The pair met after Matarazzo's parents found out about Wosnik's plan to start an organization that helps those with CCD
• The disorder has gotten more visibility after Matarazzo's condition was written into the hit Netflix show 

By Sean Devlin For Dailymail.com

Published: 03:19 GMT, 27 February 2018 | Updated: 08:01 GMT, 27 February 2018

A nurse practitioner and the star of Netflix's 'Stranger Things' share a bond that very few people do - and the pair were able to meet to talk about plans to help others with their condition.

Kelly Wosnik, 41, works as a medical professional in Utah, suffers from a bone growth disorder called cleidocranial dysplasia (CCD) - those affected are born without collarbones and have problems with their teeth, often requiring painful and expensive surgeries.

'Stranger Things' star Gaten Matarazzo also has the condition, which is written into the story of the show, bringing awareness to the rare disease. When Gaten's parents found out about Wosnik's desires to start a charity to help others with CCD, they got in contact and set up a meeting between the two.

'I wondered what a 14-year-old would see in a 41-year-old,' said Wosnik to the Deseret Times.

'Then I opened the door and it was an instant connection. He saw me and just hugged me. And when I finally let go, he didn't.' 

Kelly Wosnik and Gaten Mattarazzo (above) share the rare bone condition cleidocrainal dysplasia, or CCD

The disorder affects just one in a million people - Wosnik, a nurse practitioner in Utah, hadn't met anyone else with the disorder until she was 33 years old

The two first met last year on Presidents Day weekend. They sat down and drew up plans to start the organization that became CCD Smiles - taking note of what awareness can do to help those that suffer from a condition.

'He wants to do anything he can to help,' Wosnik said of Matarazzo. 'He's wise beyond his years. He's very empathetic.' 

Wosnik, who had never met anyone else with CCD until she was 33, appeared with Matarazzo last month on the ABC show 'The Doctors'. 

To date, their appearance has garnered over two million views on YouTube.

Together with Matarazzo, Wosnik helped found CCD Smiles, an organization that brings awareness in the public about the condition (Pictured here with other sufferers of the disease)

Like Matarazzo, Wosnik reported that there bullying was an issue in her childhood, with many referring to her dental issues.

 'Teeth are a big deal,' said Wosnik. 'To a teenager especially. You feel so isolated, so alone. So you lose confidence.'

What is CCD? 

Cleidocrainal dysplasia affects about one in a million people - the disease is characterized by problems with development in the bones and teeth. A hallmark of the disease is underdeveloped or absent clavicle bones, and delayed development of the skull is often present.

Abnormalities with teeth are also very common - primary teeth often take longer to fall out, secondary teeth take longer to appear, and the teeth are often misshapen. The disease can also often go undiagnosed due to individual who exhibit minor symptoms. 

Wosnik decided to study medicine in college, eventually attaining a doctorate in nurse. Her course of study included a thesis on CCD - and eventually, she hopes her foundation will help pay for dental surgeries for those afflicted that can't afford them.

“At one in a million, we really could help every single person with CCD,” she said. 

Wosnik and Mattarazzo recently appeared on the ABC show 'The Doctors' - their appearance has gotten over 2 million views on YouTube

Mattarazzo, seen here in a shot from 'Stranger Things'- had his condition written into the show

 

 

 

Read more:

Let's block ads! (Why?)

Thus Article Nurse and Stranger Things star bond over condition

That's an article Nurse and Stranger Things star bond over condition This time, hopefully can give benefits to all of you. well, see you in posting other articles.

You are now reading the article Nurse and Stranger Things star bond over condition with the link address https://coneknews.blogspot.com/2018/02/nurse-and-stranger-things-star-bond.html

Tweet

Subscribe to receive free email updates: